The Third Room

I recently heard a sermon presented by Ian Stitt of the Neighboring Place in Denver. He said that the mission of the Neighboring Place, a coffee shop and gathering place for those who are houseless, is to be God’s living room. Most towns and cities offer God’s kitchen, a place for food, or God’s bedroom, a place to sleep. But there are a few places offering God’s living room. He went on to talk about living rooms as a place where memories are made.

As I listened, I realized that if I were to list the places where most of my memories were made, it would be kitchens, outdoors, and living rooms. But rarely are the most special memories in my living room. Instead, they were in places where I was invited, welcomed, and with others.

Our public school classrooms are often the third room for students. They are welcomed in at a young age with their name on the door and a desk or a hook. At an older age, with a roster and expectations of engagement. Special education rooms are third rooms as well. For many of the students in a special education setting, this is the only place where they feel a true sense of belonging. This is not because the general education teachers don’t welcome them. It is because the peers in the room have more in common.

The students in a special education classroom, particularly the settings where a student is likely to spend most of their day or instructional time, are composed of students who all struggle in similar ways. Communication, academics, behavior, or emotional regulation become the descriptors of the program. Inside the program are students who are bracing themselves each day to try again at the things the adults are demanding, and yet, seem too difficult or out of reach too often. It is no wonder that these classrooms become the “safe space” for the students. They don’t have to explain themselves if they have an emotional outburst or didn’t say “hello.” Everyone knows why.

I believe this feeling of commonality, shared experiences, and familiarity is part of why inclusion is such a challenge.

If I think about who I choose to spend my time with outside of work, it is most often with people with whom I share interests, hobbies, and values. No, we are not all clones believing in one single outlook, but we do share a faith, background, interests, strengths, and struggles. For example, I love to read. My friends are also readers. We talk about books, make plans to visit new bookstores, and watch movie versions of the books we read. We talk about a lot of other things, but the conversations about books link us. You can see this as trends like Book-Tok and book influencers grow in success. Another example is fitness. Those who like to run, walk, hike, lift weights, on hit the yoga mat tend to have friends who also run, walk, lift weights, and do a down dog regularly.

This is the key to belonging—inclusion.

We need to focus less on location and more on the strengths, interests, hobbies, and skills that students share. When we shift from seeing the student as the “one with the disability” to “one of the rambunctious boys” or “a social, chatty student” or “one of the quiet observers,” we find that all students belong in the classroom. It becomes a living room of conversations, laughter, and memories rather than a study in ethics and evidence-based practices.

Instead of a general education classroom and a special education classroom, we have a third room—the classroom for all students.

One Voice Is Enough

I don’t know about you, but I’ve been struggling. I feel like things are changing daily, and I can’t keep up. As a special educator, I don’t know if the systems that support people with disabilities are going to sustain the help, or if they are going to disappear or change their focus. I have lived all of my life with a fair amount of confidence in what the future will be, and now I am unsure.

What I now realize is that it is not all the changes that make me feel uncertain, but rather, how I respond to the changes. Politics, global tensions, wars, threats of recession, pandemics, drought and flooding…so many things pulling my attention away from what matters most to me: empowering people with disabilities to thrive.

When I am stressed, I watch a movie that I know I will enjoy because I have seen it before (or a lot), and do something creative. Tonight, I watched a classic character–Elle Woods– and as she always does, she inspired me in her own way. The movie I watched was Legally Blonde 2. In this movie, Elle Woods, played by Reese Witherspoon, is in Washington, DC, advocating for a bill to stop animal testing by cosmetics companies. And, in the closing monologue, as she speaks to the House, she reminded me that “one honest voice can speak louder than a crowd.”

What would happen if we made space for an honest voice at our IEP meetings? What if the honest voice was the student’s?

Far too many students do not have an effective communication system, yet they are communicating. We need to make space for their voice. When we listen, really listen, to the student, we learn how to best support them to achieve their dreams.

And, what would happen if we each remember that our voice matters? As the world gets noisy, we can calmly and honestly speak the truth as we know it. For example, I know that individuals with disabilities are critical members of our community. I know that a community that does not include all of the people within it is weaker than it should be. I know that students with disabilities are learning tremendous amounts every day, even if it was not the target for the class. And I know that our students who don’t have an effective communication system have a lot to say to us.

Looking Forward

Last week I felt anxious and my heart kept racing. I realized it was because of the feeling and reports of uncertainty in the news and on social media. So, I turned it off and focused on planning my day. Within two days I felt more in control and ready to make plans for a whole week.

I am lucky, this feeling only lasted a few days for me. Uncertainty is common for parents, sneaking up at unexpected moments. For parents of students with disabilities, uncertainty can become overwhelming. The IEP process asks parents what their long- and short-term goals are for their child. They are asked about the best strategies, reinforcers, and goal ideas.

How can a parent be expected to see into the future? The future is the only thing a person can change. We can not change the past.

Looking forward one can see possibilities rather than regrets, doubts, or ghosts of the past. Taking a step forward is scary, but a start. Sometimes we do not see the destination, but we can see the path we are on.

In the moments of uncertainty, I hope you can lift your head, look forward, and take a step. And for those on a path that is not serving them, choose a new track.

Pick Me!

I was not the most athletic child. I could run and play, but I wasn’t the fastest, strongest, or best at anything athletic. In P.E. I never made it even halfway up the rope to the bell and was never a contender for a President’s Fitness Award (some of you are now guessing my age). None of that bothered me.

But organized recess games and the dodgeball games in P.E. did, not because of the activity, but because of the first few minutes when two captains would be chosen and then, one-by-one, select members for their team. I would stand there praying, please, oh please, this one time, please pick me. Typically, I was last or next to the last selection despite my internal pleas.

Not being chosen had me convinced “I am not good at sports.” It wasn’t until high school that I realized the lie I had believed. I am good at sports I want to play. Not competitor-level good, but good enough to have fun and secure a spot on the school lacrosse team.

I think about this as I watch students look at a book and think, “I am not good at reading.” Or when they enter a cafeteria, and you can see them thinking “I am not good enough to be their friend.”

Sometimes this message was an unintended consequence of a teacher or adult trying to protect a student by not having them read aloud when other students did, or not sharing their math problem solution, but letting their tablemate do so. In our effort to protect students from failure, we may be, quite accidentally, leaving them in their seats praying silently, please, pick me.

Then there is the converse when we assign a student with a disability a buddy or friend. Hear me out, I think the social group programs that pair up students with and without disabilities are great. But, I think we need to remember that our friends weren’t chosen for us, we chose them. Sometimes the person we want to be friends with doesn’t want to be our friend, and that is okay. It is a part of life. Sometimes we were introduced to someone because a third person thought we had “so much in common.” And that is great too. But in each of those scenarios, we have a choice to stay or go. Students with disabilities need that same choice, and sometimes, they will choose someone who doesn’t want to be their friend. Okay, let’s teach them how to accept that, and then introduce to other peers who have similar interests.

I wonder, if I had been the first choice, or even a choice halfway through picking the teams, would I have tried out for more school athletic teams? Would I have started running and working out younger? Maybe. Maybe not. Maybe sprits isn’t my thing, But, I do know, that every child should know there is someone who sees their value, and says the three magical words, “I pick you.”

Fortune Telling

I have wanted to be a special education teacher since age three. I didn’t realize that this was unusual until high school. I thought everyone just “knew” what they would be when they grew up. It wasn’t until I watched my classmates struggle to decide where to go to college that I realized I was different.

Then, in college, I had friends struggling to declare a major, and again when changing majors while trying to graduate on time. My journey was so clear to me. Yet, I did wonder, why didn’t I have doubts? Why didn’t I have more interests? The truth is, I believe that God had led me to the career that fills my soul but also fills my desire to continue to learn and grow. I am a teacher.

Politics and social media have changed what it means to say, “I am a teacher.”

But nothing can change the incredible experience of being a teacher.

As a special educator, I support students in their journey to adulthood. I get to help them navigate friendships, learn new skills, and discover their gifts and passions. All of this leads to the greatest of decisions, what do you want to be when you grow up?

The Individuals with Disabilities Education Act, (IDEA), requires a transition plan complete with career goals by age 16. Many states, realizing the challenges of successful transitions to adulthood, have required transition planning beginning at age 14.

Age 14 allows for a focus on adulthood, often beginning in middle school, and throughout the entire high school career. The belief is, with good planning the student will know what their goals are and then do the work to achieve them. However, the reality is, they don’t usually know what they want to do. It is rare that a student has a clear vision for their life—I know, I was an exception.

Purposeful planning for the discovery of a career is the true test of a transition plan. Does it leave room for change? IF the student, like their peers, changes their mind about what they like or want to do, can the plan shift with them? How do we plan, but still allow natural adolescence?

I fear that parents feel pressured to become fortune tellers, looking into their crystal ball to see what career will fit their child’s gifts, passions, and dreams. But, like the fortune tellers at a fair, the vision they see is only the image of what may be, not what it is.

If we can see one vision, why are we afraid to see a different one? If we saw the students as a worker in a local restaurant, why not see them as the manager in a local firm? Why are we limiting ourselves to our visions? Life is far more interesting than a single vision. We should encourage trying out a variety of careers and options. Often, the joy is in the journey, not just the destination.

Similarly, when a student has a clear vision for their future, we need to foster it. As teachers, we can help them create a concrete plan to achieve their dream. After all, While I was different from my peers, I was not unique. There are others with a clear plan for their future, and, like me, it is a career that fills their mind and soul. We can all work together to help them step into their dream.

A New School Year

My social media accounts are showing signs of school starting with pictures of new backpacks, wish lists for our amazing teachers, and first day of school photos capturing the special moment.

Similar to these posts, I love the start of a new school year. As a child, it meant a new teacher, a classroom, and a carefully selected back-to-school outfit. I loved selecting my new box of crayons, markers, and pens, and looked forward to covering my books. (For those who are younger than I am, we were required to cover our textbooks with a carefully origami-folded paper grocery bag.)

Not everyone is excited. For some students school is hard. The work is hard. Making friends is hard. Learning to advocate for yourself is hard. Following directions and sitting for long periods of time is hard. And these are only a few of the reasons.

Students with disabilities have support to start the school year off well, but there are no guarantees. Parents have carefully planned for the future at IEP meetings. Yet, despite this planning and preparation, things may happen. There is no way to avoid the, well…unavoidable, surprise. Things may not go as planned. There may be services or supports not in place as everyone works through scheduling.

While everything may not go as planned. But…that means it is possible that things could go better than planned. Sometimes the greatest gifts are the unexpected ones. Days that I had an adult out sick or there was a sudden and unplanned schedule change could be stressful, but often I was surprised with good news. The student whose para was out demonstrated they were ready to be more independent. The schedule change showed me  a better alternative to the one we were attached to as “routine.”

The same is true when there was a staffing change. I like knowing the collaborating teacher ahead of time, but often, the “new” teacher was exactly the person needed at that time.

As students begin a year of unknowns, I try to look at the good surprises rather than fear the ones I can not control. After all, you tend to find what you look for in life.

Hidden in Plain Sight

People with disabilities comprise about 29% of the United States population. Yet, if I were to reflect on my experiences of the past month, I have only seen a person with a visible disability 3 times. Keep in mind that I have visited large, ticketed events, restaurants, bars, malls, stores, and grocery stores. Where are the people with disabilities?

While it is true that there are many disabilities we cannot see, there is a large number of people with visible disabilities who simply aren’t represented equitability in my community. In the past (although not a distant enough past) individuals with significant disabilities were sent to institutions. But we know better. Yet, when was the last time you saw a child with a disability playing at the local park or on a splash pad? When did you last see an adolescent with disabilities at an arcade or youth sports? When was the last time you sat at a bar and saw a person with a disability sharing a drink with a friend?

As a child, I remember concentrating on the faces of children missing printed on milk cartons so I could identify them when I saw them. I never saw one of those children, and I feel much the same today as I look around me for representatives of my entire community, not just those with no disability or invisible disabilities. 

To be honest, I also hate the phrase “invisible disability,” because it isn’t invisible to the person or those who love them. I wish I had better language and welcome suggestions to help me articulate clearly my desire to empower all people. 

I do know that we no longer hide people away in an institution. But I also know we aren’t fully welcoming of all people and differences. I hope that in a small way, bringing to light who is missing will start a small ripple of change. The next time you are out, will you notice who is there but also who isn’t? Will you start to look for the members of our community with disabilities and opportunities to engage them as equals in your community? Will you advocate for accessible opportunities? 

I hope so. 

And to the self-advocates and their families, I offer you an opportunity to share how I can support you, welcome you, and empower you. 

Passion Is a Really Good Thing

Growing up, I associated the phrase “you are so passionate” with my weaknesses. I believed that passion was because a person wasn’t strong enough to stay cool, calm, and collected. As I grew, I believed passion was an antonym of professionalism.

I was wrong. It took me a while, (okay, the truth is it took a couple of decades) to learn that passion is a strength. It is a sign of commitment and an urgent call to action. When someone is passionate, they are not weak. They are simply demonstrating their strong heart and mind aligned and pointing to a single issue.

My passion is good. It is why I continue to seek ways to empower individuals with disabilities every day, even when the data tells me that my efforts haven’t accomplished my goals. Passion is what keeps me up late at night. Passion is what helps me to empathize with those I don’t agree with. Passion is what raises my voice above the noise of media. Passion is what makes me an expert.

I hope our children and young adults find their passion. For some, their passion will lead them to a career. Hopefully, it is one they enjoy and excites them throughout their life. For others, their passion will become a hobby. Both careers and hobbies are needed. One provides the fiscal resources to live, and the other feeds the heart and adds value to living.

Understanding the value of passion also helps me be a better IEP team member. Each person is passionate about the success of the student. Listening to the ideas and perspectives of each person can result in a stronger IEP, and ultimately, greater student success.

And so, I step into my passion. No longer apologizing for it, but instead, unabashedly sharing it. My passion can be the spark to ignite change, which is a really good thing.

Resolutions

I resolve to strive for better and accept my best.

I resolve to listen to my mind, heart, and body, even when what they ask for is a break.

I resolve to play more, laugh often, and earn my smile lines.

I resolve to let others live their own life while cheering them on their journey.

I resolve to leave 2022 in the past and embrace each day as a new moment.

I resolve to remember and celebrate traditions while creating new ones.

I resolve to be grateful for the progress and release myself from waiting for perfection.

I resolve to forgive myself and love whom I have become.

I resolve to not make any resolution that doesn’t serve me and to change my resolutions once they are no longer meeting my needs.

Happy New Year, and January 2, and each day after. Alison

Start Before You Are Ready

On the Work In Progress podcast, Cecile Richards shared a guiding statement: “Start before you are ready.”

I thought back to all the adventures in my life I started before I was truly ready. As someone who works so hard to get it done perfectly, I want to be fully prepared, yet I remember so many times that I thought I was ready when I wasn’t really. Significant moments that come to mind include the first day of high school, starting on the lacrosse team, going to college, running a half marathon, and my first job. I experienced each of these moments even though I hadn’t proven beyond a doubt that I was ready.

How often do we expect students, particularly students with disabilities, to “prove” they are ready?

For instance, in the first few weeks of kindergarten, you will observe students who are already reading and writing their names, some who know all the letters, and some who have not yet learned the names of most letters. You will see students working with their peers and some who are shy. Some students will cry or cling to their parents and others run right into class. These are natural differences. Yet, every year, there are kindergarteners with a disability assigned to a separate classroom until they can show they are ready; ready to read, ready to listen, and ready to work independently. Why are we asking them to achieve a higher level than their peers?

This expectation of “readiness” continues throughout their school years, to high school. The Individuals with Disabilities Education Act (IDEA) requires a transition plan for students beginning no later than age 16. The students need to identify their career goals and education/training plans following high school. Some will also have goals related to independence and community involvement. This is important work. It helps everyone plan together to support the student to achieve their goals. When training or working with teachers and parents, the number one concern I hear is that students choose goals they aren’t ready for or can’t possibly achieve. As a result, we hold students back, waiting for them to be ready. How will they learn to be ready if they aren’t allowed to try it? Some of my greatest victories were when I had to try, fail, and try again. Why are we so afraid that a student with a disability will make a mistake? Or fail on their first, second, or thirty-fifth try? We are, unintentionally, denying the experience of victory and accomplishment.

Admittedly, the stakes get higher as the students get older. This is why it is essential we provide them opportunities early and often. Before they are ready, let them go to kindergarten, try to ride a bike, try out for the talent show, and play tetherball. They will learn life-long lessons about the value of perseverance and become resilient with each effort. Then, as adults, they will have the fortitude to try a new job, learn a new skill, or move out to go to school. In short, they will become confident, resilient adults. Isn’t that the goal?